2016 Brain Aneurysm Foundation Annual Report 2016-Brain-Aneurysm-Foundation-Annual-Report | Page 14

Brain Aneurysm Foundation
11
ADVOCACY
5 TH Year on Capitol Hill is a Great Success
On May 11, 2016 we had the best turnout with nearly 100 participants from 16 different states.
The group was made up of patients, caregivers, medical professionals, corporate stakeholders,
as well as families and friends honoring those lost and survived. Many thanks to all who
participated and especially Arnold and Porter, LLP for setting up over 100 meetings so we could
make the case for more brain aneurysm awareness and research funding.
Historic Brain Aneurysm Legislation
Makes Inroads on Capitol Hill
Each year, the
federal government
spends just
“Ellie’s Law” (H.R. 6185), named after Ellie Helton, was formally introduced in the U.S. House of
Representatives by Representatives Renee Ellmers (R-NC) and Yvette Clarke (D-NY). If passed,
this legislation would authorize $25 million in federal funding for brain aneurysm research. Ellie’s
Law provides the National Institute of Neurological Disorders and Stroke (NINDS) with $25
million ($5 million per year for 5 years) to conduct or support further comprehensive research
on unruptured intracranial aneurysms, studying a broader patient population diversified by age,
sex, and race.
83¢
Number of Deaths, Federal Funding in 2015
on brain aneurysm
research for each
person affected.
Brain Aneurysms, Brain Cancer, and Ovarian Cancer
= 1,000 deaths
BRAIN CANCER
= $10 million
OVARIAN CANCER
BRAIN ANEURYSMS
Sources:
National Institutes of Health “Estimates of Funding for Various Research, Condition, and Disease Categories (RCDC),
FY2015 American Cancer Society, “Estimated Number of New Cancer Cases and Deaths by Sex, US, 2015”
National Institute of Neurological Disorders and Stroke (NINDS), “Cerebral Aneurysms Fact Sheet”